I’m 27 now.

February 1st, 2012

I turned 27 last sunday (January 29). I’m still, you know, barely an adult, but 27. Blogging might be more regular, might not.

Actually, maybe I should do a Q&A? So, ask away!

I suck

January 3rd, 2012

I do. I make life easier for my brother, makes life easier for my mom, makes life easier for her wife, etc. I get lost in that equation.

Sacrificing this much is starting to kill me.

2011

December 29th, 2011

2011 sucked. Plain and simple. We (My brother and I) moved into a Thomashuis, a grouphome for Autistics, got kicked out/left/long boring story, and spend a year at our moms with a small tiny bedroom.

Good thing, we found a nice place at last and we’re probably moving in tomorrow (Friday). So, 2012, you better be good to me. Get me a girlfriend. Make me happy.

Sorry I’ve been away.

Today was good.

November 9th, 2011

Then why do I feel like shit? I had a wonderful day with my nephew, come home, and boom. In the dumps.

Not sure why. Longterm stress mixed with winter depression, I guess. And I’m not sure who to talk to about this, or other issues. I don’t really talk to my parents about it, and I really don’t know who else.

Well, yeah.

November 7th, 2011

I went to my psychiatrist today. She thinks I’m at the beginning of a depression, based on me not sleeping well.

So, I’m now allowed to take a little more Sertraline (Or Zoloft), which is probably smart. I don’t feel like getting depressed, even though I’m already half way there.

It’s a lot of things, too many to get into, really.

Today I’m pretty out of it

November 4th, 2011

I can’t look at things dead-on. I’ve been watching things in my room fluttering in the fan out of the corner of my eye. My head bobs when I don’t think very hard about moving smoothly.

I feel the absolute need to flex my fingers rhythmically and strain them until they almost hurt.

Things are incredibly distracting.

I’m finding it hard to find words today.

I can’t pay any attention to things that are important to others right now.

I think this is all because I’m exhausted. I suffer from what are called “cluster headaches.” They’re a neurological “disorder” as is Autism. I think it’s weird that they’re both “neurological disorders” when only one of them causes me suffering and only one of them I feel needs a cure. cluster headaches cause me pain, and after they’re finished, extreme exhaustion, mentally and physically. They’re the worst pain I’ve ever experienced. Afterward I’m a shell. I’m absolute crap at anything else for the rest of the day. I fight sleep, trying desperately to salvage a sleeping pattern. I suffer from insomnia as well.

Autism doesn’t help nor hender me for the most part. There are times when I don’t relate to the world nearly as much as others believe I should, but that doesn’t mean that I think I should. That doesn’t mean I want to communicate with the world, or relate to the world.

I like being “differently brained” as some autists have taken to calling it.

The thing I don’t like about being autistic is not being able to explain that from my point of view, I’m normal and others are mean to make me feel badly for being myself. If I want to stare “off in space” while you’re talking, I should be able to do that. You should also know that I’m paying attention to you even though it “appears” that I’m not. I remember everything anyone says regardless of whether or not it interests me. When I’m not looking at you while you’re talking, I’m listening just as much, if not more, than neuro-typical people.

Sometimes on days like this I’m reminded of how much work and effort I put into appearing to be a neuro-typical person and how useless it is. We do a lot to try to fit in with the neuro-typical world because the way we live, the way we think, the way we do things makes NT’s uncomfortable.

Think about it that way next time instead of saying “oh that poor boy can’t speak.” That doesn’t mean he can’t communicate, and he can’t have dreams, or do amazing things. Autists who do not speak have a language you can’t understand. The more we try to understand those languages, the more we’ll realise how “normal” they actually are.

They’re not trapped in their own minds by autism, they’re trapped in their own minds by a neuro-typical world.

Here’s a link I totally agree with.

November 3rd, 2011

Autistic People Superior in Multiple Areas: Scientists Must Stop Emphasizing Autistics’ Shortcomings, Expert Urges”

Because when you focus on the shortcomings, you’ll just end with a lot of Autistic people with minority complexes. Like me.

School, and how I kind of wish I did better

October 25th, 2011

I went to school. It went relatively well. I got a MAVO diploma. I got some HAVO. (English, Math).

I wish I did better. It wasn’t a bad experience, even though I’m a giant geek who always carries around comics to make himself feel more secure.

I went to special education later on. But in the end, I just lack the discipline. And I have this thing were, if I can’t see the reason behind it, I can’t do it. Like, writing a sociology paper? Too boring. I don’t even wanted that subject, but it was part of the package. If I could pick/choose, I wouldn’t do it. Or biology. Or chemistry. So boring.

I know I’m not dumb. But sometimes I do want some validation of it, if that makes sense.

October 25th, 2011

Youri made an update about dating earlier that reminded me of how much I lack those feelings at times.

I am currently in a relationship, however before this relationship I was single for years. I didn’t mind it; in fact I liked it. I like being alone because it’s easier for me. It takes an incredibly understanding and strong person to be in a partnership with me. I spend most of my time secluded from others. I have extreme social anxiety, and I don’t go to busy places by myself. When I do go to busy places, having a friend or family member does help, but it doesn’t cure the fact that I hate every minute of it.

I have a sensory disorder that is part of my autism-package:

  • I hate being touched. I hate touching things that don’t have an agreeable texture.

No matter how much I want to hold someone’s hand, or want to hug a friend, I have to talk myself into actually doing it for far longer than most people. It tends to take me months to touch people, and may take years for me to comfortably be touched by them. This means that if you walk up behind me and tap me on the shoulder, I might have a breakdown.

When I buy clothes (rare) I buy them based upon how they feel rather than how they look. When I was a child my mother had to turn my socks inside out and cut the bits at the end so they didn’t press in on my toes. Many times a week we wouldn’t be able to leave the house until my socks were on correctly.

I feel humidity much more than other people. I can usually tell you the percentage within 2% margin of error.

  • I hear everything at once and cannot tune things out.

We have a running-water bowl for the pets in the house and it sits downstairs in the “back room” which is my step-dad’s hobby area. I can hear the water running from any room in the house, including the upstairs and sometimes outside. I have extreme hearing and things that are loud to you, are excruciating to me. This does not mean that I can interpret everything I hear. I have a very hard time processing some frequencies, including those used in the voices of some people. So, while I hear everything, I cannot always understand the sounds. This can cause a lot of annoyance and confusion for me.

There are many aspects of my sensory disorder, but these are the ones that hender my dating and relationships. As you can see, there are a lot of major aspects of “going out” that I hate. I could never take someone who interests me out on a successful date. All of my potential partners have to understand this, and not all of them think I’m worth it. I do not blame them at all, and I don’t mind at all if they tell me up front because I appreciate honesty and direct nature. I would rather not waste their time and mine by trying to pursue something that is clearly not going to work for either of us.

I’m extremely grateful to have people in my life who understand these things about me, including my family, friends, and girlfriend. It wasn’t always that way. I hope this project helps the loved ones of other adults with autism to understand a little more about how differently we operate!

Dating…

October 24th, 2011

So, I’ve had a profile on a known dating site for a while. Some people looking, aside from maybe one girl, no one actually messaging me. And she’s in Prague, so. Yes.

Obviously, I shouldn’t have mentioned I’m autistic. Or have red hair. But she’d find that out the very first time she’d meet me anyway, so, why not?

This is what annoys me. I know. I’m far from easy to deal with. But does that mean I should be ignored? And yes, I take care of my autistic/mentally disabled brother which takes a lot of energy, but come on.

I honestly think I’m just getting overlooked at relationships, every single time.